Monday, May 14, 2007

More pictures

Finley continues to do well. All the challenges we are dealing with are normal things at this stage. He had his first real bath tonight...lots of crying, but ultimately crisp and clean.
Let's get straight to the pictures.
Love to all,
Markles

This is Gwen, Robyn's friend and coworker. She has been so great. She put on a really nice shower for Robyn in April and has organized several dinners for us since we got home. Thank you Gwen!!


This is Fin watching his Uncle Stephen's Ottawa Senators take a stranglehold in their series.





Finley is sporting the awesome Crocs that his cousins Madison and Kennedy sent to him.






Saturday, May 12, 2007

Grandma Hannah's return visit

Grandma Hannah arrived safely this afternoon. She got ripped off on her first visit because she got sick and couldn't visit Finley in the NICU. She is all better and here for 10 days or so.
Finley is one lucky little boy... his next-door neighbour, Ethan (Paul and Courtney Wright's almost-4-month-old), has loaned him a whole drawer full of awesome clothes. He is modeling some of them in some of these pictures and will continue to show the whole line in the coming weeks. Thank you Wrights!!!
The 3-week-old continues to do well and is enjoying walks in his Baby Bjorn (thank you Biers!!).
It will be a very special Mother's Day tomorrow, indeed.
Much love,
Fin, Robyn, Kevin, Tasman, and Grandma Hannah

Thursday, May 10, 2007

Fun in Mommy and Daddy's bed

I'm trying to spice the titles of the posts up a little bit to help our ratings. :-)
Here are some pictures of the two buddies from early this afternoon.
Love,
Mommy, Daddy, and the two best friends

Wednesday, May 9, 2007

Some videos

We have had some requests (okay, 1 from Uncle Stephen, but we aim to please) for some videos. These were taken tonight with our new video camera, so hopefully they will be better quality than the ones posted here previously. You be the judge.
We heard back from the neurologist after some technical difficulties getting the videos to him. He said that he did not see anything that looked like seizures to him. Big relief to us. So we march on.
Love to all,
The movie star and his parents

This is some video of Finley taking his medicine

Video of Finley waking up

Some pictures

We are giving Mommy a little sleep-in which she so deserves, so Fin and I are just hanging out and thought we would post some pictures from last night. I figured out how to edit my videos (in a very simple way, anyway) and sent them to the neurologist last night. We hope to hear back today at some point, but there is no guarantee he will have time in his day today. Will keep you posted.
Love,
RKFT

p.s. Forgot to report that at the doctor yesterday Finley was 8 lbs 3 oz (he was 6 / 14 at birth), so he is doing great in that regard.



Tuesday, May 8, 2007

Some more firsts

We went for our first walk on Sunday afternoon. We realized that we do not have any clothes for him (just pj's) and it was about 65 F out. So we went to the closet and found a bear outfit he had been given for Christmas before he was even born and he wore that... luckily we did not pass any Children's Aid folks on our walk.
We have just come from his first appointment with his paediatrician. It went well. The greatest thing she said after examining him was "if you didn't know his story, you would think this is just a regular kid". That was great to hear.
We have received several messages since coming home. Thank you so much for those. Several people are saying things like "you fought and won" and "it is awesome to see that he has come through this". I want to caution all of us to remember that he is still on a very high dose of a strong drug and the doctors have no idea what caused the seizures or if that cause is still there. He is indeed a hero in our eyes for the fight he has shown thus far, but we don't know how many more battles lie ahead. We got a blunt reminder of this on Sunday night. As he slept on my chest, he began twitching quite strongly and it lasted for a while and recurred a couple of times. We don't know whether it was seizure activity or not. Luckily we thought to grab the video camera and tape it. We showed the tape to the paediatrician today hoping she would say "oh, that is perfectly normal", but she didn't. She has recommended that we email the clip to the neurologist (and actually spoke to him during our appointment to confirm that this was okay). All hail technology!! This has given us a lot of peace of mind because now we know we have this resource if other things happen over the remaining three weeks before we go back to the neurologist.
Otherwise, he continues to do great and we are just loving having him home and cuddling him and loving him.
Much love,
Mommy, Daddy, Finley, and Tasman

Sunday, May 6, 2007

Home sweet home

Do blogs end? We are brand new to the blogosphere, so don't know what the protocol is. But we are clearly entering a new phase in which there will not be (we hope beyond all hope) health-related events occurring on a regular basis. In short, Finley is now just like every other precious little baby except that he is taking in a dose of phenobarbital every day for at least the next month (our next appointment with the neurologist is May 30 - if we don't see him before then, it means everything has been fine).
When his birth was imminent, we had figured out the whole blogging thing and planned to use it as a way to share pictures, stories and videos with friends and family who live far away. So that is what this blog will be transitioning to now. Each and every one of you that has so faithfully followed him through his incredible first two weeks is completely welcome to continue visiting the blog and sharing in our journey going forward. The posts will likely become less frequent (it is markedly more difficult to find time to blog when there is not a nurse responsible for caring for your child 24/7) and more mundane... and we could not be happier about that. Of course, if he encounters more trouble as his little brain sorts out what is wrong in there, we will update that here.
Below are some more pictures from the last couple of days and a video of something that seemed like a dream two weeks ago... Finley sleeping in his own crib in his own nursery.
We will never be able to adequately express the gratitude we feel for the love, support, encouragement and prayers we have received over the last two weeks. It brought strength when we were physically exhausted, hope when we were in complete despair, and faith when there was no sense to be found. Finley will one day look back with the same wonder that we feel now at how awesome the power of love and prayer is.
Love to all,
Robyn, Kevin, and Finley

One day it will completely disgust Finley that his Daddy has more chest hair than Austin Powers, but for now it makes a great pillow

This is Finley with Tasman's in-laws (Starbucks' parents), Nathan and Christi Scholl

In his very own crib...
The most beautiful sight...