Thursday evening

As you can see, he is back to being wired for sound. He will likely have his crown of many colours for at least 24 hours, maybe longer. While we hate that it means we can't hold him, we both feel much better knowing that the (lack of) seizures are being monitored. So far, it looks like they are back under control. He actually opened his eyes today for a good stretch and was sucking on his Mommy's finger pretty well (as you can see in the picture). And he has been moving around and active a bit. If they had not reduced the drugs and brought back the seizures yesterday, I would have been writing that this was another good day. So those seizures were just a reminder to us that there is still much ground to cover.
The doctors were as surprised by and disappointed with his reaction to the reduction in his drug as we were. But at the end of the day, it is an answer to a question and the answers are what this whole process is about. He continues to show us positive signs. He is eating and pooping well. There is a picture below of the syringe of milk that he was eating this afternoon. Based on the tests of levels of the basics in his system, the doctor described Mommy's breastmilk as rocket fuel... they will likely be stopping all of the supplements soon.
You will see in the picture above that we have renovated his tray with some pictures of us and of his new best friend, Tasman, who waits patiently at home to smother him with kisses. As your cards come in, we will be able to hang them where he can see them, too.
Several local folks have asked if there are things they can do to help with our house or Tasman or other things. Thank you for your offers. These things are taken care of. Tasman is being very well cared for by our friends Nathan and Christi and gets to spend most of her day with her boyfriend, Starbucks. And my parents and Robyn's Mom are here now and staying at the house, so it is being taken care of. We will definitely call on people if needs arise. We are so thankful to have those options.
It has been a down day after a couple of good ones. But we are trying to remember that he is still just 5 days old. We remain hopeful and vigilant. And we continue to be so uplifted by your prayers and incredible love and support.
Much love,
Finley, Mommy, Daddy, and Tasman