Monday night

Today had its highs and lows... we are getting used to that. The head neonatologist came and sat with us for a good half hour and just chatted with us. It was great. We asked him bluntly, "Is there a chance that Finley is going to die?". And he said "no". That was a huge relief to us and something I think we were not allowing ourselves to think about. We have no doubt that he was being completely frank and honest with us. So there is huge cause for celebration.
Finley was taken off his EEG today. We still only have the preliminary impressions of the neurologist to go on. We have not yet been told what the 24 hours of monitoring actually showed about whether the seizures were stopped. Once he was off the monitors, Robyn was able to hold him again for a good long while, which was fantastic.
He had his MRI this evening. We do not have any idea what it showed. It was one time that we were very grateful for how out-of-it he is right now so that the hour in the big machine was not too traumatic for him. We will get those results tomorrow. That is likely the biggest "report" we will be getting in this whole process. They are confident that the MRI will show what, if anything, is wrong with his brain. We are terrified to hear that report, but also look forward to some clarity. There will also be results tomorrow from the neurologist and from the cultures on his spinal fluid. So, I think we can officially dub tomorrow "results day". We are going to do our best to get some rest to build our strength to tackle it.
We have been given one of the "sleeping rooms" in the NICU, so will be able to stay here with him all day and night at least until Thursday. We are so thankful for this. It was going to be very hard to go home without him. We are glad to defer dealing with that for a few days.
Your emails and calls are so greatly appreciated. Thank you so much for them. We feel very loved and supported.
There will definitely be news tomorrow.
Until then...
With much love,
Robyn, Kevin, and Finley